捐助支持
加入本會
登記做義工
捐助支持
加入本會
登記做義工
About RDHKOur Members
Numbers of Members（As of 18 March 2024）
Total Members: 795
Full Members: 709
Individual: 696
Organizational: 9
Ordinary Members: 90
Types of rare diseases: 219
Rare disease
175Sacral Chordoma (骶骨脊索瘤)
176Schaaf-Yang Syndrome (SYS) (Schaaf-Yang症候群)
177Schinzel Giedion Syndrome (SGS) (Schinzel Giedion綜合症)
178Sciatic Nerve Tumors / Schwannoma (坐骨神腫瘤) (交感神經失調症)
179SCN1A Syndrome (Genetic Disorder)
180SCN2A Syndrome (Genetic Disorder)
181SCN8A Syndrome (Genetic Disorder)
182Short Bowel Syndrome (短腸症)
183Sialidosis Type 1 (涎酸酵素缺乏症第1型)
184Smith-Magenis Syndrome (SMS) (史密斯-馬吉利氏症)
185Spina Bifida (SB) (先天性脊椎裂症)
186Spinal Muscular Atrophy (SMA) - Type 1 (脊髓肌肉萎縮症第1型)
187Spinal Muscular Atrophy (SMA) - Type 2 (脊髓肌肉萎縮症第2型)
188Spinal Muscular Atrophy (SMA) - Type 3 (脊髓肌肉萎縮症第3型)
189Spinalcerebellar Ataxia (SCA) - Type 2 (小腦萎縮症第2型)
190Spinalcerebellar Ataxia (SCA) - Type 3 (小腦萎縮症第3型)
191Spinalcerebellar Ataxia (SCA) - Type 35 (小腦萎縮症 - 第35型)
192Spondyloepiphyseal Dysplasia Congenita (SEDC) (先天性脊椎骨骺發育不全症)
193Stat1 Immunodeficiency (Genetic Disorder) (Stat1免疫缺陷) (基因突變)
194Stiff Person Syndrome (SPS) (僵硬人症)